Important Steps When You Begin CAYSTON®

resource guide

Get familiar with all of the resources that can help you start and stay on track with CAYSTON.

Before you can receive your first shipment of CAYSTON, it is important that you complete and understand the following steps in preparation.

STEP 1: ENROLL INTO THE CAYSTON ACCESS PROGRAM® (CAP)

Your cystic fibrosis (CF) care team will ask you to complete a Cayston Access Program application form [English] [Español], which is required to provide you with the ALTERA® Nebulizer System, along with additional methods of access and support.

STEP 2: CHOOSE YOUR SPECIALTY PHARMACY

Most insurance plans will automatically select a specialty pharmacy for you. If you are able to choose one, make sure the specialty pharmacy you choose is covered by your insurer. Learn more about specialty pharmacies here.

STEP 3: SCHEDULE YOUR FIRST CAYSTON SHIPMENT

Call your specialty pharmacy to order and confirm a delivery date for your first shipment of CAYSTON. If you do not take this step, your CAYSTON will not be delivered to your home.

Remember: your specialty pharmacy may call you from an unknown number to set up an account—be sure to check your voicemail for messages from missed calls.

For a list of specialty pharmacies and their contact information, click here.

Complete CAYSTON shipment supplies

Inside your first CAYSTON shipment you'll find:

Complete CAYSTON shipment supplies
  • CAYSTON vials and saline ampules
  • An ALTERA Nebulizer System, including the ALTERA Controller Unit and one handset
  • One ALTERA Handset
  • ALTERA Nebulizer System warranty card from the manufacturer (PARI). You can also find the warranty card here. It’s important to complete and submit the ALTERA warranty card to PARI so they can honor the 2-year limited warranty and additional 12-month extended warranty.
  • Additional items or instructions that may come from your specialty pharmacy, such as brochures and informational literature

WATCH NOW

Understanding your first CAYSTON shipment

STEP 4: PREPARE FOR YOUR FIRST TREATMENT

Before you receive your first treatment, it’s important that you familiarize yourself with your ALTERA Nebulizer, what you need to do before taking a dose of CAYSTON, and how to prepare your CAYSTON for treatment. For more detailed instructions on prepping, click here.

Dosing Schedule

It’s critical to your treatment plan that you fit all 3 doses of CAYSTON into your schedule. Learn more about how CAYSTON can fit into your day here.

Cleaning your ALTERA Nebulizer Handset

To reduce the risk of infection and ensure proper operation, the ALTERA Nebulizer Handset should be cleaned after each treatment and disinfected at the end of the day. You should clean and dry your ALTERA Nebulizer Handset(s) as soon as possible after each use.

There are 2 ways you can disinfect your ALTERA Nebulizer Handsets: you can boil them in distilled water or you can use a chemical disinfectant. If you choose to use a chemical disinfectant, use a commercially available medical device disinfectant such as Control III®. Follow the disinfectant manufacturer's directions for use. (Note: If you have multiple handsets, you can disinfect them all at once at the end of each day.)

Click here for more detailed instructions on how to disinfect and clean your ALTERA Nebulizer Handset.

Here's how to properly store your CAYSTON:

  • Your CAYSTON shipment will arrive on ice
  • Keep your CAYSTON and saline in the refrigerator until you’re ready to use them
  • Once you remove your CAYSTON and saline from the refrigerator, they can be stored at room temperature (less than 77 °F) for up to 28 days
  • Always keep your CAYSTON and saline together
  • Keep CAYSTON away from light
  • Do not use CAYSTON or the saline after the expiration date
  • Order a CAYSTON carrying case to properly store and carry your treatment with you when you’re away from home

STEP 5: SIGN UP FOR MY CAYSTON COMMUNITY™

Your go-to resource for how-tos, hacks, and helpful tips from members of the CAYSTON community.

Enroll in My Cayston Community.

The support system I rely on is essential in helping me cope with all of this. They provide encouragement and support I need when things are difficult.”

Read Brian’s tips on building a support system as you begin CAYSTON.
Learn About Specialty Pharmacies
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